National Organisations


Support, advice and information for families with disabled children.
Services include benefits checks and grant searches.

For more information:

Tel:  0808 808 3555 

Email: info@contact.org.uk

Contact website (external website)


Information and support for families of children with brain related conditions.
Services include a team of sleep practitioners.

For more information:

Tel: 01267 244 200 

Email enquiries@cerebra.org.uk 

Cerebra (external website)

Caudwell Children

Support, advice and information for families with disabled children.

Tel: 0345 300 1348

Email: charity@caudwellchildren.com

Caudwell Children (external website)


Working in partnership with people with a learning disability to support them to live life as they choose.

Tel: 0808 808 1111  

Email information@mencap.org.uk   

Mencap (external website)


Impartial and expert information, advice and support to disabled people and their families

Services include support with applying for charitable funds.

Tel: 0808 800 3333

Email:  helpline@scope.org.uk

Scope (external website)


The UK charity for brothers and sisters of disabled children and adults.

Sibs (external website) 

Image in Action

A member of the Sex Education Forum at the National Children’s Bureau and the Council for Disabled Children: Providing people with disabilities or additional learning needs with information and understand about sexuality.

Image in Action (external website)

Integrate Families

National Centre for Child Trauma and Dissociation

Integrate Families (external website)

Sky Badger

Help for physical disabilities, special educational needs, mental health problems as well as finding support for your whole family.

Sky Badger (external website)


Information and support to people with Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder and related conditions.

Adders (external website)

Addiss ADHD Information Services

Information and resources about Attention Deficit Hyperactivity Disorder

Tel: 020 8952 2800

Email info@addiss.co.uk

Addiss ADHD Information Service (external website)

Challenging Behaviour Foundation

Support for children and adults with severe learning disabilities and challenging behaviour.

Tel: 0300 666 0126

Email support@thecbf.org.uk

Challenging Behaviour Foundation (external website) 

Pathological Demand Avoidance Syndrome (PDA)

Information, resources and support for families dealing with PDA

PDA Contact Group (external website)

The National Autistic Society - What is Pathological Demand Avoidance? (external website)

National Autistic Society

Information and support for people with autism (including Asperger syndrome) and their families.

Services include: Education Rights Service and Parent To Parent

Tel: 0808 8004104

Email: supportercare@nas.org.uk

National Autistic Society (external website)

The Den - Autism education trust

The Den (external website)

The Curly Hair Project

The Curly Hair Project (external website)

The Autism Directory

The Autism Directory (external website)

British Dyslexia Association

Information and support for dyslexic people of all ages to reach their full potential.

Tel: 0333 405 4555

Email helpline@bdadyslexia.org.uk

British Dyslexia Association (external website)

Dyspraxia Foundation

Information and support for people with dyspraxia, providing practical advice on how to manage day-to-day dificulties.

Tel: (01462) 454986  

Email: info@dyspraxiafoundation.org.uk  

Dyspraxia Foundation (external website)

Epilepsy Action

Information and support for people with Epilepsy and their families.

Tel: 0808 800 5050

Email: helpline@epilepsy.org.uk

Epilepsy Action (external website)

Young Epilepsy

Provideing families and professionals with information, education and training about epilepsy in young people.

Tel: (01342) 831342

Email: info@youngepilepsy.org.uk 

Young Epilepsy (external website)

ERIC - The Children's Bowel and Bladder charity

A helpline for any child or teenager with a bowel or bladder issue, or their parent or carer.

Tel: 0808 1699 949  (Monday to Thursday 10am–2pm) 

Eric (external website)

Diabetes UK

Provides information, advice and support to help people manage their diabetes effectively.

Tel: 01925 653281

Email northyorks@diabetes.org.uk

Diabetes UK (external website)

Cystic Fibrosis Trust

Advice, support and information on any aspect of cystic fibrosis, including help with financial support.

Tel: 0300 373 1000

Email helpline@cysticfibrosis.org.uk

Cystic Fibrosis Trust (external website)

Anaphylaxis Campaign

Providing information and support relating to foods and other triggers, to people at risk from severe allergic reactions (anaphylaxis).

Tel: (01252) 542029

Email: info@anaphylaxis.org.uk  

Anaphylaxis Campaign (external website)

Action for ME - Association Of Young People With Me/CFS

Support for children and young people (up to 26 years) who have ME/CFS and their parents. 

Tel: (0117) 927 9551

Email: questions@actionforme.org.uk  

Action for ME - Association Of Young People With Me (external website)

Hypnotherapy Directory

Launched to connect individuals with qualified hypnotherapists in the UK.

Tel: 0333 325 2502

Hypnotherapy-directory (external website)

National Deaf Children Society (NDCS)

Helpline providing emotional and practical support and publications to families of children with hearing impairment.

Tel: 0808 800 8880

Email: helpline@ndcs.org.uk

National Deaf Children Society (external website) 


Information, advice and support for children and adults who are deaf blind, dual-sensory impairments.

Tel: 0845 127 0066 or 020 7520 0972

Email info@sense.org.uk

Sense (external website)

Royal National Institute of Blind People (RNIB)

Supporting people who are losing their sight, blind or partially sighted, our practical and emotional support can help you face the future with confidence.

Tel: 0303 123 9999 (Monday to Friday 8.45am - 5.30pm)

Email: helpline@rnib.org.uk

Royal National Institute of Blind People (external website)

The Royal Society for Blind Children

We support children and young people aged 0 to 25yrs who have been diagnosed with any form of visual impairment. To contact the family support worker covering Hull and East Riding

Tel: 020 3198 0225

Email: enquiries@rsbc.org.uk

The Royal Society for Blind Children (external website)

Retina UK

We fund research and provide information and support to those affected by inherited retinal dystrophies, inherited sight loss and the professionals who support them.

Helpline: 0300 111 4000

Email: info@RetinaUK.org.uk

Retina UK (external website)

Muscular Dystrophy Campaign

Supporting families affected by muscle-wasting conditions.

Tel: 020 7803 4800

Email info@muscular-dystrophy.org

Muscular Dystrophy Campaign (external website)

Steps Charity

Information and support for anyone affected by clubfoot, hip dysplasia and other lower limb deficiencies.

Tel:  01925 750271

Email: info@steps-charity.org.uk

Steps Charity (external website)

Scoliosis Association (UK)

Advice, support and information to people with scoliosis and other spinal conditions, including kyphosis and lordosis.

Tel: 020 8964 1166

Email info@sauk.org.uk

Scoliosis Association UK (external website)

The Children's Sleep Charity

Our aim is that “All children are supported to get a good night’s sleep and that the importance of sleep for children’s mental, emotional and physical well being is valued and established across England and Wales”

Tel: (01302) 751416

Email: info@thesleepcharity.org.uk

The Children's Sleep Charity (external website)

Tired Out

A sleep support service by Family Fund aims support parents and carers of disabled children with sleep issues includes information about UK-wide support available to families in their local area and provides useful sleep tips and a wide range of research, resources and stories from families themselves.

Email: tiredout@familyfund.org.uk

Tired Out (external website)

The Communication Trust

Working together the trust supports everyone who works with children and young people in England to support their speech, language and communication. 

Tel: 0207 843 2526

Email: enquiries@thecommunicationtrust.org.uk

The Communication Trust (external website)

I Can

A service for parents who are concerned about their child’s speech, language and communication, to enable them to book a phone call to talk to a speech and language therapist.

Tel: 020 7843 2510 

Email: info@ican.org.uk

I Can (external website)


Support and information for children and their parents to overcome speech and language difficulties.

Tel: 0300 666 9410

Afasic (external website)


Helping those affected by stammering, providing information, membership and support for adults/parents and sign post to NHS and other specialist courses to help deal with stammering.

Tel: 020 8983 1003

Email: mail@stamma.org

Stamma (external website)

Tourettes Action  

The leading support and research charity for people with Tourette Syndrome and their families. 

Tel: 0300 777 8427

Tourettes-action (external website)

SWAN UK (Syndromes Without A Name)

Run by Genetic Alliance UK offering support and information to parents of children with undiagnosed genetic conditions.

Tel: 0207 704 3141  

Email info@undiagnosed.org.uk

SWAN UK (external website) 

Down's Syndrome Association

Information and support around all aspects of living successfully with Down's syndrome.  

Tel: 0333 1212 300

Email info@downs-syndrome.org.uk

Down's Syndrome Association (external website)

Little People UK

Friendship and support to people with dwarfism, their families and friends.

Email info@littlepeopleuk.org

Little People UK (external website)

The Fragile X Society

Support and information to fragile X families.

Tel: (01371) 875100

Email info@fragilex.org.uk

Fragile X Society (external website)

National Organisation For Foetal Alcohol Syndrome UK

Information and support for people with foetal alcohol spectrum disorders (FASD), their families and communities.

Tel: 020 8458 5951

Email: info@nofas-uk.org

National Organisation For Foetal Alcohol Syndrome UK (external website) 

Max Appeal (DiGeorge Syndrome)

Information and support for parents of children diagnosed with DiGeorge Syndrome/VCFS/22q11.2 deletion.

Tel: 0300 999 2211

Max Appeal (external website)

The Anti-Bullying Alliance defines bullying as the repetitive, intentional hurting of one person or group by another person or group, where the relationship involves an imbalance of power. Bullying can be physical, verbal or psychological.  It can happen face-to-face or through cyberspace.

The Anti-bullying Alliance

Provides information, advice and resources for young people with Special Educational Needs and Disability, parent carers and professionals in relation to bullying.

Anti-bullying Alliance (external website)

Anti-bullying Alliance mental health briefing Nov 15 (pdf 1056kb, opens in new window)


Support, advice and information for families with disabled children. 

Tel:  0808 808 3555 

Email: info@cafamily.org.uk   

Contact website (external website)    

Contact a Family dealing with bullying booklet (pdf 728kb, opens in new window)


Top tips for young people, staying in control on social networking areas.

Safety Net (word 82kb, opens in new window)

Internet Safety tips for adults (word 477kb, opens in new window)

NSPCC Childline resource

Bounce back from bullying (external website)

For more organisations offering support and information, please also visit the FISH Family Service Directory

FISH Family Service Directory (external Council website).


Tel:  0800 1111

Childline (external website)

Not in Our Community 

Offers support, advice and information about the issue of Child Sexual Exploitation to ensure that more vulnerable young people and their families are more informed and less of a target for perpetrators.

Not in Our Community (external website)

Child Exploitation & Online Protection (CEOP)

Child Exploitation & Online Protection (external website)

For more organisations offering support and information, please also visit the FISH Family Service Directory

FISH Family Service Directory (external Council website).

A Child Of Mine

A wealth of information guidance and support on all aspects bereavement for a child (or anyone affected by the death of a child)

Tel: 01785 283 434

Email: hello@achildofmine.org.uk

A Child of Mine (external website)

Winston's Wish

A leading childhood bereavement charity in the UK and offer support & guidance to bereaved children, families and professionals.

Freephone Helpline tel: 08088 020 021

Email: ask@winstonswish.org

Winston's Wish (external website) 

Children’s Education Advisory Service

The Children’s Education Advisory Service (CEAS) within the Ministry of Defence provides advice and guidance to Service parents, educational establishments and local authorities on educational issues relating to Service children, including issues relating to SEN.  As such, links to CEAS should be included on all local offers, as essentially any Service family, anywhere in England, can access CEAS support. 

 The Children’s Education Advisory Service (external Government website)